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Sam is Battling Leukemia

Posted by admin at 1:28 pm

21 year old Sam was diagnosed with Leukemia last year and has been staring it down ever since. Not only is Sam fighting her own battle, she is also using her situation as an opportunity to encourage kids fighting cancer and other illnesses.

Message from Sam: “I was diagnosed with Acute Myeloid Leukemia on August 12, 2012 at the age of 20. I was completely shocked, but I knew I just had to put my boxing gloves on and fight. And that’s what I did. After my first round of chemo I was in remission, but with the flt3 mutation I had in my cancer cells I had no choice but to have a Stem Cell Transplant or the cancer would keep coming back. I went through 2 more rounds of chemo and 4 days, twice a day, of radiation just before transplant so my bone marrow was gone. On November 8th 2012 I had my transplant. Since then I have been dealing with the side effects of the chemo and radiation and healing from my transplant. I spend my time by volunteering and sending cancer/sick kids care packages filled with a build-a-bear. If anyone needs a listening ear, I’m always ready to listen.”

Sam’s Facebook page: Sam B-Helping cancer/sick kids through random acts

Please join us in surrounding Sam and her family in love and let them know she is in your thoughts and prayers by clicking “Send a Hug”, Comment or Share below:

Natalie is Battling Cerebral Palsy

Posted by admin at 2:24 pm

Natalie is a beautiful 7 year old girl who was diagnosed with Spastic Diplegia Cerebral Palsy at the age of 3. She is having major surgery today.

Natalie’s Facebook page: A Chance For Natalie

Please join us in surrounding Natalie and her family in love and let them know she is in your thoughts and prayers by clicking “Send a Hug”, Comment or Share below:

Jodi is Battling Stage 4 Brain Cancer

Posted by admin at 9:27 am

Jodi lost her son to cancer four years ago and just found out she has stage 4 brain cancer herself.

Please join us in surrounding Jodi and her family in love and let them know she is in your thoughts and prayers by clicking “Send a Hug”, Comment or Share below:

Logan is Battling Serious Health Issues

Posted by admin at 3:14 pm

3 year old Logan has been battling serious medical conditions since soon after he was born. Please read the message from his mother below then let Logan and his family know he is in your thoughts and prayers by clicking Like (equals a hug), Comment or Share.

From Logan’s mother: “Logan has been in and out of the hospital since he was only a month old. He was diagnosed with Gastroparesis and FPIES and as a result has a feeding tube, a central line and is on TPN feeds. He continues to fight daily and has a long road ahead of him!

More info >> Logan’s Facebook Page

Please join us in surrounding Logan and his family in love and let them know he is in your thoughts and prayers by clicking “Send a Hug”, Comment or Share below:

Ali is Battling Batten’s Disease

Posted by admin at 10:29 am

In July 2011, at the age of three, Ali was diagnosed with Batten’s disease – a rare neurological disease for which there is currently no cure.

From Ali’s mother: “How can I convey the essence of Angel Ali? Nothing can do justice! She is the epitome of a Hero in every sense! She is the most inspirational & devoted lil girl I have ever met. Ali was born without a disability, loved to dance, sing & play her Harmonica. At age 3, she was diagnosed with a rare, fatal terminal neurological disease known as Batten’s disease. This disease has robbed Ali of her ability to walk, talk & eat & will take her vision next leaving her a vegetable to die. Ali has been given a life expectancy to 8-10 years old. However, we know that we have a “Rare Rock Star” & we cherish everyday. Ali will not give up & teaches others not to give up either. Ali’s brain tells her that she can’t; but her heart tells her she can!”

Ali’s Facebook page: Ali’s Angels

Please join us in surrounding Ali and her family in love and let them know she is in your thoughts and prayers by clicking “Send a Hug”, Comment or Share below:

Brian is Battling Brain Cancer

Posted by admin at 10:21 am

Last month we noticed a new member of our community here on Facebook who was kindly and gently offering words of encouragement to children battling cancer… as someone who truly knows their pain.

We reached out to Brian and asked if we could share his story and surround him with love through his battle as well.

Here is Brian’s reply: “In January 2013 I was diagnosed with glioblastoma grade 4 cancer. I had a golfball size tumor removed from my brain in St Vincent Indianapolis. The biopsy came back malignant at that time. I am going through chemo and radiation treatment and have lost my hair but not my will to live. It’s hard at times with the fatigue and headaches to do my normal routine as before, but with Gods mercy, grace, love and kindness, I just know that I will be fine. My heart goes out to the children though who have this dreaded disease. God Bless them!”

Please join us in surrounding Brian in love and let him know he is in your thoughts and prayers by clicking “Send a Hug”, Comment or Share below:

Micah is Battling a Rare Liver Disease

Posted by admin at 10:46 am

Micah is an amazing 3 year old boy battling a genetic liver disease called Pyruvate Dehydrogenase Deficiency (PDH).

Micah’s mommy sent us the following message: “Hello my name is Micah! I’m 3years old. I have a Genetic Liver Disease called Pryuvate Dehydrogenase Deficiency. My liver is at 0%, Drs said I wouldn’t make it past 5 months, then they said 1 year and now they just don’t know. I beat the odds and proved them wrong. There is NO cure, and look im still here and fighting. They said i would never talk, walk, eat by mouth or be a normal child! It’s been a long and tough few years but with my family and friends support and God with me I’m going to continue to fight. I have a feeding tube, im on the ketogenic diet, ive been thru alot of surgeries and alot of test. I have 2 older brothers ages 6 and 4 and a little brother who is 5 months old. I love my family and friends.”

More Information:
–> Micah’s Facebook Page
–> Micah’s Fundraiser

Please join us in surrounding Micah and his family in love and let them know he is in your thoughts and prayers by clicking “Send a Hug”, Comment or Share below:

Alyssa is Battling Mitochondrial Disease

Posted by admin at 1:06 pm

Alyssa may be smiling in this picture – but there is pain behind the smile. She has been battling Mitochondrial disease and Dysautonomia for over a decade. This week has been especially tough for her and she will be going in for yet another surgery in the next few days.

From Alyssa: “I have been fighting Mitochondrial disease complex 1 and Dysautonomia for 13 years. In the last few years my Mitochondrial disease has really progressed. I am fed through a G tube. I also have a central line for hydration and pain management. Due to the mitochondrial disease I sleep at least 18 hours a day. I also have extreme weakness and can’t walk very far. Life with these illnesses is a daily struggle.”

Alyssa’s Facebook page: My Life With MITO

Please join us in surrounding Alyssa and her family in love and let her know she is in your thoughts and prayers by clicking “Send a Hug”, Comment or Share below:

Payton is Battling a Rare Genetic Disorder

Posted by admin at 10:38 am

Adorable Payton is battling a rare genetic disorder. Please read the comments from her mother below then let Payton’s family know she is in your thoughts and prayers by clicking Like (equals a hug), Comment or Share.

From Payton’s mother: “Payton is 20 months old and she has a rare genetic disorder called MPS1 or hurlers syndrome. The disease only occurs in 1 in 100,000 births. Without treatment it will cause early death. The disease causes stiff joints, hearing loss, organ damage, clouded cornea, carpal tunnel syndrome, distant facial features, short stature and many others. Payton already has heart issues due to the disease and bone issues. She recently had a bone marrow transplant which will slow the progression of the disease down but she will still live with problems due to the disease. Not many people have heard of MPS so we want to raise awareness and get her story out there.”

>> Payton’s Facebook page: Prayers For Payton

Please join us in surrounding Payton and her family in love and let her know she is in your thoughts and prayers by clicking “Send a Hug”, Comment or Share below:

Bud Needs a Kidney Transplant

Posted by admin at 11:32 am

Bud Floor is battling kidney disease and his daughter is asking for your help.

Jody (Bud’s daughter): “My dad needs a kidney. He’s been aware that he was losing kidney function for a few years now. We are not sure if it is genetic or if something else is going on. About 2 months ago, he went to a nephrologist that suggested getting on the transplant list then and started the process. A month ago, Dad was still living a full life, and was noticing he was tired more. This past couple weeks he’s only been awake for a few hours a day. It wasn’t scary until that happened. Dad is A – blood type, which means that most people can donate to him. Problem is, he’s not ‘sick enough’ to be very high up the list. We are looking for a living donor for him.

Please contact 1-800-633-9906 x2 to get a screening packet or visit Barnes Jewish Hospital Kidney Donation Information”

Thank you!

Please join us in surrounding Bud and his family in love and let them know he is in your thoughts and prayers by clicking “Send a Hug”, Comment or Share below: